January 2, 2015

ALS WORLDWIDE: OPTIMISTIC AND PASSIONATE IN PURSUIT OF TREATMENT


Guests:  Stephen and Barbara Byer, co-founders and co-directors of ALS Worldwide;  Barry Wein, Director of Philanthropy and Communications and Sarah Byer, Outreach Counselor



We all remember the successful Ice Bucket Challenge that swept the nation this summer.  Now you can learn more about the devastating disease - ALS (Amyotrophic Lateral Sclerosis), also known as Lou Gehrig's disease - the cause behind the Challenge. "It's been described as life in a glass coffin," say Barbara and Stephen Byer, co-founders and co-directors of ALS Worldwide.

On this program, the Byers, whose son, Ben, died from ALS, share their story.  They are joined by Barry Wein, Dir. of Philanthropy and Sarah Byer, Outreach Counselor.  ALS Worldwide is committed to supporting patient care in over 85 countries and is working now to accelerate research of a new and promising drug treatment for ALS.  For more information, go to www.ALSworldwide.org.